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E-Module

An HIV and Rehab Resource

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  • About
    • 1 – What is this resource about and who is it for?
    • 2 – Why was this resource created?
    • 3 – How can this resource be used?
    • 4 – Can this resource be used for teaching?
    • 5 – How was this resource developed?
    • 6 – Who contributed to developing this adapted resource?
    • 7 – Who funded the development of this resource?
    • 8 – Disclaimer
  • Section 1
    • 1.1 How is “rehabilitation” defined in this resource?
    • 1.2 How can rehabilitation help people living with HIV?
    • 1.3 How can the World Health Organization’s “ICF” help us think about rehabilitation for people living with HIV?
    • 1.4 How can the Episodic Disability Model help us think about rehabilitation for people living with HIV?
    • 1.5 Who provides rehabilitation for people living with HIV?
    • 1.6 Do rehabilitation providers need special skills or training to care for people living with HIV? If so, what?
    • 1.7 What roles do rehabilitation providers have related to HIV?
    • 1.8 When is rehabilitation clinical intervention useful along the HIV care continuum?
  • Section 2
    • 2.1 What do rehabilitation professionals need to know about the stages of HIV infection?
    • 2.2 What do rehabilitation providers need to know about CD4 count and viral load?
    • 2.3 What is the impact of HIV on body systems and why does this matter for rehabilitation providers?
    • 2.4 Who might rehabilitation providers treat?
    • 2.5 What do rehabilitation providers need to know about antiretroviral therapies?
  • Section 3
    • 3.1 What are the rehabilitation interventions that address impairments common among people living with HIV?
    • 3.2 What are the rehabilitation interventions that can address the activity limitations and participation restrictions common among people living with HIV?
    • 3.3 More information on the rehabilitation interventions available for people living with HIV
    • 3.4 – What do rehabilitation providers need to know about their patients’ beliefs and use of traditional healers, spiritual leaders and alternative therapies outside the formal medical system?
  • Section 4
    • 4.1: Intersectionality Theory in the Context of Rehabilitation
    • 4.2: Children and Youth
    • 4.3: HIV and Aging
    • 4.4: Substance Use
    • 4.5: Trauma
    • 4.6: Racialized Populations
    • 4.7: Indigenous Populations
    • 4.8: HIV, Sex and Gender
    • 4.9: HIV and COVID-19
    • 4.10: Is HIV itself a disability?
  • Section 5
    • 5.1 What are outcome measures?
    • 5.2 Why is it important to use outcome measures during rehabilitation with people living with HIV?
    • 5.3 How do rehabilitation providers know if an outcome measure will be useful in practice?
    • 5.4 What are floor and ceiling effects in outcome measurement?
    • 5.5 What is the difference between generic and HIV-specific outcome measures?
    • 5.6 How should you decide which outcome measures to use?
    • 5.7 How do you access a copy of an outcome measure?
    • 5.8 What are rehabilitation-related outcome measures that can be useful for people living with HIV?
  • Case Studies
    • Case #1 – Acute Care, Cardiorespiratory and Neurological
    • Case #2 – Musculoskeletal – Knee Pain
    • Case #3 – Aging, Cognition, Community, Stroke
    • Case #4 – Complex Case – Musculoskeletal, Episodic, Cardiorespiratory
    • Case #5 – Diabetes, Neuropathy, Substance Use
    • Case #6 – Transition from Paediatric to Adult Care
    • Supplemental Case Studies without Leading Questions
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1.7 What roles do rehabilitation providers have related to HIV?

Table 1.7: Roles of Rehabilitation Providers

Table 1.7: Roles of Rehabilitation Providers
Roles of Rehabilitation Providers Examples
Clinical care From health promotion, to prevention, referrals, acute care, rehabilitation, habilitation and palliation.

E.g., see Section 1.8 for details of clinical roles for rehabilitation.

Advocacy Using one’s knowledge and status in the community to advocate for change in support of the needs of people living with, or at risk for, HIV.

E.g., advocating for inclusion of rehabilitation in HIV National Strategic Plans, advocating for HIV physicians to refer to rehabilitation, advocating for people living with HIV who are marginalized to receive equitable care, advocating for food security.

Capacity- building Providing training to others to enhance the inclusion and participation of people living with HIV in their communities.

E.g., education to employers about how to support employees living with HIV, education to parents or other family members about appropriate HIV precautions and how to combat HIV-related stigma.

Research Rehabilitation researchers can incorporate HIV into the conditions that they are investigating along with developing and conducting HIV specific studies.

E.g., research to develop a tool to assess HIV-related disability,1 research on when and how people with disabilities may be excluded from HIV care and how to address this,2 research on non-pharmacological treatment of peripheral neuropathy or lipodystrophy,3,4 research on rehabilitation with children living with HIV,5 rehabilitation on pain management in HIV,6 research on safe and effective exercise prescription for people living with HIV.7,8

1 O’Brien KK, Bayoumi AM, Bereket T, Swinton M, Alexander R, King K, Solomon P. Sensibility assessment of the HIV Disability Questionnaire. Disabil Rehabil. 2013 Apr;35(7):566-77. doi: 10.3109/ 09638288.2012.702848. Epub 2012 Jul 21. PubMed PMID: 22816434.

2 Nixon SA, Cameron C, Hanass-Hancock J, Simwaba P, Solomon P, Bond V, Menon JA, Richardson E, Stevens M, Zack E. Perceptions of HIV-related health services in Zambia for people with disabilities who are HIV-positive. J Int AIDS Society. 2014;17:18806.

3 Mutimura E, Crowther NJ, Cade TW, Yarasheski KE, Stewart A. Exercise training reduces central adiposity and improves metabolic indices in HAART-treated HIV-positive subjects in Rwanda: a randomized controlled trial. AIDS Res Hum Retroviruses. 2008a Jan;24(1):15-23. PubMed PMID: 18275343.

4 Mutimura E, Stewart A, Crowther NJ, Yarasheski KE, Cade WT. The effects of exercise training on quality of life in HAART-treated HIV-positive Rwandan subjects with body fat redistribution. Qual Life Res. 2008b Apr;17(3):377-85. PubMed PMID: 18320351.

5 Potterton J, Stewart A, Cooper P, Becker P. The effect of a basic home stimulation program on the development of young children infected with HIV. Dev Med Child Neurol. 2010 Jun;52(6):547-51. doi: 10.1111/j.1469-8749.2009.03534.x. Nov 28. PMID: 20002116.

6 Parker R, Stein DJ, Jelsma J. Pain in people living with HIV/AIDS: a systematic review. J Int AIDS Soc. 2014; 17(1): 18719. Published online Feb 18, 2014. doi: 10.7448/IAS.17.1.18719.

7 O’Brien KK, Tynan AM, Nixon SA, Glazier RH. Effectiveness of Progressive Resistive Exercise (PRE) in the context of HIV: systematic review and meta-analysis using the Cochrane Collaboration protocol. BMC Infect Dis. 2017 Apr 12;17(1):268. doi: 10.1186/s12879-017-2342-8. PMID: 28403830.

8 O’Brien KK, Tynan AM, Nixon SA, Glazier RH. Effectiveness of aerobic exercise for adults living with HIV: systematic review and meta-analysis using the Cochrane Collaboration protocol. BMC Infect Dis. 2016 Apr 26;16:182. doi: 10.1186/s12879-016-1478-2. PMID: 27112335

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